Histiocytosis: Information and Support
HistiocytosisNews is a website created to provide information and support to those interested in learning more about Histiocytosis or are affected by it. Pick one of the following links to start:
...a quick intro to Histiocytosis
Alternate names for Histiocytosis X:eosinophilic granuloma; nonlipid reticuloendotheliosis; Langerhans Cell Histiocytosis (LCH); Letterer-Siwe disease; Hand-Schuller-Christian disease; pulmonary langerhans cell granulomatosis; pulmonary histiosytosis X;
There are three common types of Histiocytosis X which all characterizes an increase in the number of histiocyte cells in the blood. (histiocytes are a form of white blood cell in the body which widely multiply when possibly threatening foreign cells enter our body... they are sort of like the defence unit)
 In order of increasing severity, these three types are Eosinophilic Granuloma, Hand-Schuller-Christian Disease, and Letterer- Siwe disease.
In the case of patients with Histiocytosis X, the histiocytes in their bodies multiply uncontrollably for an unknown reason, forming masses of tumor like tissue, attacking and causing damage to the patients bones, spleen, liver, lungs, skin and lymph nodes. In many ways, Histiocytosis X is like cancer --although remission may take place without treatment.
Eosinophilic Granuloma are more commonly found in children and young adults. Hand-Schuller-Christian Disease is present mainly in children under 5 years old and Letterer-Siwe disease is mostly present in children 2 and under. (which is often fatal)
Learn more about Histiocytosis...
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...quick note from amy...
 An Illness like this one is fairly uncommon. Nevertheless, those who suffer from this illness would undoubtedly agree on the frustrations and hardships that it brings to its victims and their families.
Since I've been diagnosed with this illness when I was 12 (in 1990), I have tried hard to find out more about this fairly anonymous disease with the help of textbooks and the internet. Noting the limited sources of information on Histiocytosis X, I have decided to devote this website as a new source for anyone searching for information and support for this, at times, horrifying illness.
Please feel free to browse through the website and exchange messages on our message board with other fighters and their families. I have been looking for support for so many years and it's been a rough road. Please feel free to share your stories and thoughts here. Hope you'll find the site a beginning to the healing process for you and your family!
Love and much blessings, Amy
Read more about Amy's story here.
...recently...
Happy to report that all has been well. Lately I had a chance to reflect and speak about my illness and it's really brought to light one thing - that I must put my faith and trust in God - he has a path for me and I want to say yes to it. We are constantly surrounded by material things and yet with certain pain and suffering do we realize what's more important in this life - to love and to be loved ...gotta remember to enjoy and have fun always! Thanks for listening!
Love and much blessings, Amy
(March 2007)
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